INVOLVE, the Advisory Panel set up by the National Institute of Health Research to advance involvement in medical research provides the following definition of Patient and Public Involvement:
“INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. This includes, for example, working with research funders to prioritise research, offering advice as members of a project steering group, commenting on and developing research materials and undertaking interviews with research participants".
The involvement of 'people with a 'lived experience' of scarring and our Scar Free Foundation Ambassadors are present throughout our activities, Advisory Panels, Research Council, and on our Board of Trustees.