Cleft Gene Bank & Cohort Study

Cleft lip and/or palate is the most common facial birth defect. Established in 2012 and hosted by the University of Bristol, The Scar Free Foundation Cleft Gene Bank and Cohort Study collects biological samples of children born with a cleft and their parents, along with information on demographic, lifestyle and psychological data. With over 2,000 families now participating in the study, making it one of the world’s largest biobanks, the study is providing unprecedented insight into what causes cleft, the best treatments and how to ensure children with cleft develop properly.