Scar Free Foundation Ambassador Tattyana is pictured above. Tattyana sustained a burn injury when she was 8 years old. You can read her story here
Global Burn Core Outcome Set
130,000 patients with burns require treatment in A&E each year. Improved care has meant that fewer patients die, so we cannot use survival alone to measure how good care is. Researchers currently use different outcomes to assess care quality and new treatments. This makes it difficult for researchers and clinicians to work out which treatments are best. Developing and using one set of outcomes that we know is important to patients and clinicians will allow better comparison and combining of the results of research studies. By doing this, it is expected that decisions about the best care for patients can be based on evidence. A Core Outcome Set (COS) is a minimum set of outcomes agreed, defined, measured and reported in a standard way included in all studies of a specific clinical area.
This project was led by Professor Amber Young at the University of Bristol.
The project detailed below was funded by the Scar Free Foundation as partnership funding to the National Institute for Health and Care Research (NIHR) funding for a Doctoral Fellowship for Professor Amber Young. Both workstreams enabled work to produce an international Core Outcome Set (COS) for burn care research. The aim of the international COS was to support consistent outcome reporting in trials in burn care, enabling the synthesis of evidence from individual trials, to support stronger evidence for clinical decision-making. The SFF funding enabled a set of add-on projects which resulted in a greater impact for the Burn COS. These are detailed below.